Terms and Conditions

By attending the clinic you (the “Client”) have agreed to the Terms and Conditions (“Conditions”) of use with the Yorkshire Fatigue Clinic Ltd (Yorkshire Fatigue Clinic) (“we” or “us”) who provide their Service (the “Service”) through the Yorkshire Fatigue Clinic, Tower Court, Oakdale Road, Clifton Moor, York, YO30 4XL and the website www.yorkshirefatigueclinic.co.uk. Please do not attend appointments if you do not agree to all of the Conditions of this agreement.  We may revise the Conditions in the future.

Provision of assessment and rehabilitation

Yorkshire Fatigue Clinic will only provide assessment and intervention to (a) adults aged eighteen (18) years old and over; and (b) young people aged thirteen to seventeen (13 -17) years old if they are under the care of a paediatrician.

The Service is provided by appropriately qualified professionals (“Professionals”) who are registered with the relevant professional body, either the General Medical Council or Health Professionals Council.  All clinicians are members of the British Association of Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (BACME). The interventions provided are in accordance with national guidelines and practice, such as the NICE Guidelines.  The Service will not offer investigations or treatments which are not evidence based, which staff are not appropriately trained or qualified to provide, or for which the Service does not have the appropriate equipment or resources.

Once the Service has evaluated the information sent by the Client or the general practitioner (GP) it may be decided that we are unable to provide appropriate assessment or intervention, in which case we will advise accordingly.  Assessments, care planning and clinical reviews will be formulated collaboratively with the Client.  The Client may allow other people, such as carers or relatives, to be present in assessments, individual rehabilitation or workshop sessions. The identity and role of this person within the Client’s care must be made clear to the Professional.  By attending a session this person is also agreeing to the Conditions of the Service, and to maintaining the Client’s confidentiality.   Only Clients may attend group programme sessions.   If during assessment or treatment, the Service or Client assesses that further intervention would not be beneficial then the contract is terminated.

If the Client has any queries or concerns about their health they should always seek the opinion of their GP.

Consent

The Client should give voluntary and informed consent to treatment.  This can be given in the following ways:

The Professional should enable the Client to make an informed decision by providing at least a description of the Client’s condition, likely outcome and possible treatment options.  The Client can withdraw consent at any time or request further information to enable them to make an informed decision.

Confidentiality

The Service keeps electronic records on a secured system about the Client’s health and the treatment received. These records enable the Service to give the best possible care.  They are kept in confidence and will be accessed by the Professionals involved in the Client’s care.  This will normally include communicating with the GP or referring agent, particularly when the referral is funded by the NHS.

In rare circumstances the Service may need to share information about a Client with other organisations or authorities. This will be done to benefit their well-being or to comply with the law. If this is necessary, it will be done in a secure and confidential manner.  The Service will normally ask for the Client’s consent to share any information with others.  Exceptions to this would be in an emergency, where it is in the public interest, where there is danger to the Client or others or when required to by a court order or by law.

On occasions the Service may also use information to help the NHS; in these circumstances personal details that can identify the Client are removed.  The quality of the Service given will be monitored using clinical outcomes.  To compare us against other clinical services, information in a form from which the Client cannot be personally identified (pseudonymised data) may be held electronically and analysed by outside agencies, such as the National Outcomes Database for CFS/ME held by the University of Bristol.  The Service will ask for consent if carrying out research that involves the Client’s personal information.

Data Protection

The Service adheres to the Data Protection Act 1998.  The service is registered as a Data Controller with the Information Commissioner’s Office.  Information that is collected will be relevant to providing the Client’s care with the Service.  The Client must inform the Service of any changes in personal circumstances to ensure that the information held is accurate and up to date. The Client has the right to see the information that is held about them and what it is used for. Any requests should be made in writing to the Service.  The Service may withhold data that contains reference to other Clients or that may cause harm or distress.  The Service takes steps to ensure the security of personal data.

If the Client gives consent to receive marketing information about the Service, this will only be used by the Service and will not be passed on to any other body to use for marketing purposes.

Payment

Assessment or treatment sessions that are provided must be paid for in full prior to booking any further appointments and in any event if payment is not received within four weeks of the attended appointment, then the Client may be discharged from further intervention and further action taken to obtain payment.  Courses of treatment, such as attending a specific group programme, may require payment in advance.  Workshop bookings must be paid in full at the time of booking.  A penalty charge of £10 may be applied if treatment sessions are not attended and sufficient notice (at least five working days) is not given of non-attendance to allow the session to be offered to other Clients.  However, if the Client is unable to physically travel to the session, an alternative of telephone or video calling can be offered.

Complaints

The Service views feedback as a way of improving the care provided.  Therefore, if the Client has any complaint about the care they have received, they can address this informally with the Service, through discussion or writing to the Service. However, if we are unable to resolve your complaint then options for making a formal complaint are available. Clients whose care is funded by the NHS can also make formal complaints through their commissioning body or using PALS (Patient Advocacy and Liaison Service) or ICAS (Independent Complaints Advocacy Service).  Clients can also share their opinions of the care they received through the Patient Opinion website.